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News & Events

Event: Getting it Right in the Early Years: Our Collective Responsibility

Hear from CoLab Director Professor Donna Cross as we provide an overview of the early childhood landscape and launch the CoLab Strategic Framework.

News & Events

Telethon champ visits The Kids

Ten year old Scott has been walking for Telethon since he was four years old and he's now raised a massive $100 thousand for Telethon.

News & Events

Australia’s first Autism Biobank to help improve early diagnoses

A world leading Autism biobank has been officially launched in Australia today by the Minister for Health, the Hon Sussan Ley.

News & Events

Chronic illness affects young children’s school readiness

Researchers from the The Kids Research Institute Australia and UWA have found that young children with a chronic disease are more likely to fall behind their peers in a wide

News & Events

Improving the lives of kids with Type 1 Diabetes

Diabetes research got a huge boost when the WA Children’s Diabetes Research and Education Centre for Research Excellence opened late last year.

CDKL5 Publications

Publications from 2017 dating back to 2004 of CDKL5 researchers.

Our Research

We aim to share our research findings with families so that they may better understand Rett syndrome and the future for their family.

Parental perspectives on the communication abilities of their daughters with Rett syndrome

We interviewed 17 parents with a daughter with Rett syndrome to gain their perspectives on how their daughter communicates and barriers.

Clinical severity and X-chromosome inactivation

For this study, we examined how Rett syndrome characteristics can be affected by X-inactivation for 2 of the common types of mutation - p.R168X and p.T158M.

Feeding experiences and growth status in a Rett syndrome population

We set out to describe the feeding difficulties and nutrition of girls with Rett syndrome and to examine what factors may be influencing their nutrition.