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Research
Impact of biobanks on research outcomes in rare diseases: a systematic reviewThis review made the important observation that registries with biobanks had the function of both stand-alone registries and stand-alone rare disease biobanks
News & Events
Consumer Representative SpotlightMeet Rachelle Ward one of our Consumer Representatives
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Cycling Success for TheoWe are proud to have so many very talented and passionate children and youth in our T1D community.
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Top Up PhD ScholarshipsApplications are open for the next round of our Top Up Scholarships for students who are undertaking their research in type 1 diabetes-related fields.
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Seed Funding GrantsApplications are open for the next round of our Seed Funding Grants for researchers dedicated to type 1 diabetes
Research
Silver Russel syndrome in an aboriginal patient from AustraliaWe report a 4-year-old Australian Aboriginal girl who was born at 32 weeks gestation with features strongly suggestive of Silver-Russell syndrome
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Omnipod 5 studyThe research team at Perth Children's Hospital and the Children's Diabetes Centre are looking for participants to be involved in the new Omnipod 5 study
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Budding musicians bring Christmas cheerThe festive spirit has been on full display at Perth Children's Hospital (PCH) this December with children and youth living with T1D joining in on the action
Research
Perioperative pediatric tonsillectomy analgesia: A single-center review of practice and cost-effectiveness analysisTonsillectomy is one of the most common pediatric surgeries and results in considerable postoperative pain. Insufficiently managed pain is costly, risks physiological and psychological consequences with multi-modal analgesia widely recommended to minimize opioid-based agents. We determined adherence to multi-modal analgesia guidelines and assessed cost-effectiveness. We undertook a cross-sectional cohort study at a tertiary pediatric institution in Perth, Western Australia, retrospectively identifying selected patients undergoing tonsillectomy over two discrete periods of 6-week duration.
Research
The Role of the Avatar in Gaming for Trans and Gender Diverse Young PeopleA significant proportion of trans and gender diverse (TGD) young people report membership of the gaming community and resultant benefits to wellbeing. To date their experiences and needs regarding a key feature of games, the avatar, are largely unexplored, despite increasing interest in the therapeutic role of avatars in the general population. The aim of this study was to better understand the role of the avatar in gaming, its impact on TGD young people's mental health, and their unique needs regarding avatar design.