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Many girls and women with Rett syndrome experience seizures. We wanted to know if there were any factors that influenced the age when seizures first developed.

We have recently developed recommendations to support clinical practice for gastro-intestinal disorders including growth and scoliosis in Rett syndrome.

The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.

Discover the news and events of the Rett syndrome and related disorders team, and find out what the team is working on in the fields of children disorders.

News & Events

On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.

News & Events

You can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin.

News & Events

Our InterRett team visited Geelong, Australia to attend the first ever Rett Syndrome Association of Australia national conference.

Join us! Get involved with The Kids through providing a donation, volunteering your time, participating in important research, or with a professional commitment to the institute.

This research project is a collaboration between The Kids Research Institute Australia, Muscular Dystrophy Western Australia, Perth Children’s Hospital and Curtin University.

Are you 14-18 years old and attracted to people the same gender as you? We want you to help us understand how you feel other people see and treat you, and how this affects your mental health.