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With the help of clinicians and families who have children with Rett syndrome, our research aims to improve understanding of Rett syndrome.

Research

Optimal mental health in the pre-conception, pregnancy and postpartum periods is important for both maternal and infant wellbeing. Few studies, however, have focused on Indigenous women and the specific risk and protective factors that may prompt vulnerability to perinatal mental disorders in this culturally diverse population.

These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.

In order to help doctors and families reduce the risk of fractures, we developed clinical guidelines for managing bone health in Rett syndrome.

We investigated the occurrence of different types of hand stereotypies and whether they were more frequent in one hand or the other.

Mental health concerns in youth are important in their own right. However, they can be even more troubling when your child is dealing with other health conditions.

Anxiety is extreme and persistent worry that interferes with daily living and symptoms can include panic attacks, physical fear reactions and attempts to avoid the situation.

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Learn more about the Wesfarmers Centre of Vaccines and Infectious Diseases

Embrace the potential of children with Rett Syndrome by exploring how to plan opportunities for uptime, maximizing their engagement and participation in meaningful activities.