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Current projects STEPs View the recruitment flyer - professionals View the recruitment flyer - parents Register your interest (parents, caregivers,

Please email nutsforbabies@telethonkids.org.au with: Your full name Your email address Your mobile number Stage of pregnancy (weeks) Any questions or

Are you a young person (14-25 years old) who is Aboriginal and/or Torres Strait Islander and LGBTIQ?

Altitudes is a positive and supportive program for family members of young people who are receiving treatment at headspace early psychosis service.

MECP2 duplication syndrome is a rare disorder neurodevelopmental disorder that, unlike Rett syndrome, mostly affects boys.

Our research covers a broad range of areas from the influence of mutation type on health outcomes to factors impacting on the lives of familes.

Regression, including the loss of previously learned skills, such as hand function and communication skills, is one of the most suggestive features of Rett synd

Our study investigated the quality of measurements obtained using the Rett Syndrome Gross Motor Scale.

We wanted to compare the frequency of fracture episodes, and factors associated with a fracture, in females with Rett syndrome, compared to general population.

Our study investigated the impacts of spinal fusion on survival and the risk of developing respiratory infections in females with Rett syndrome.