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Autism guide makes art accessible for all

For children with Austin Spectrum Disorder (ASD), it can be hard to enjoy the simple pleasures of art, but the development of an ASD guide is helping to share the wonders of art with all.

Tapping into the healing nature of water

In Aboriginal culture, water is life, holding powerful spiritual and cultural significance and acting as a vital source of connection, food and medicine.

Redefining the future for kids in Tajikistan

Fieldworkers learning how to collect eHCI data A fieldworker collects data for the eHCI in Tajikistan The rugged, landlocked Central Asian country of

Learning to cope with uncertainty

A small group program to help parents tackle anxiety in young children diagnosed with autism has found significant improvements in both children’s anxiety and parental mental health and wellbeing.

Applying the arts to wild little hearts

When author Maurice Sendak first sketched out the story of a rambunctious little boy sent to his room without supper, there’s no way he could have known his rollercoaster tale of childhood imagination would still be speaking to the hearts of wild young things more than six decades on.

New suicide prevention guidelines point the way to better care for LGBTQA+ young people

We have developed best-practice suicide prevention guidelines for health professionals and community service providers to help them create safe spaces for LGBTQA+ young people.

Breakthrough in antibiotic discovery opens Pandora's Box

Although a staple of modern medicine, the benefits of antibiotics are waning thanks to overuse and the increasing ability of bacteria to dodge them – known as antimicrobial resistance (AMR).

Research

Effects of ganaxolone on non-seizure outcomes in CDKL5 Deficiency Disorder: Double-blind placebo-controlled randomized trial

CDKL5 deficiency disorder (CDD) is a rare developmental and epileptic encephalopathy. Ganaxolone, a neuroactive steroid, reduces the frequency of major motor seizures in children with CDD. This analysis explored the effect of ganaxolone on non-seizure outcomes. 

Research

Patient-advocate-led global coalition adapting fit-for-purpose outcomes measures to assure meaningful inclusion of DEEs in clinical trials

Existing clinical tools that measure non-seizure outcomes lack the range and granularity needed to capture skills in developmental and epileptic encephalopathy (DEE)-affected individuals who also fall in the severe to profound range of intellectual disability. This effectively excludes those with severe impairments from clinical trials, impeding the ability of sponsors to evaluate disease-modifying therapies.