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ActiveRett

Staying physically active is an important part of a healthy lifestyle. ActiveRett is a dedicated resource for helping families support their child with Rett syndrome to keep active.

How much activity is recommended?

Each family needs to select the appropriate types and levels of activity that suit their own individual needs and circumstances.

Participate in InterRett / MECP2 Duplication Research

Through InterRett we collect information on individuals with Rett syndrome on a global level. If you are a participant you can complete your questionnaire here.

News & Events

High Tea for Rett Syndome at Caversham House

Thanks for everyone who have contributed to and participated in this wonderful event to raise much needed funds to support Rett Syndrome research!

News & Events

The Silent Angel

Taylor is a remarkable young woman with Rett Syndrome who is leading an active country life with the support of her family and the local community.

ATOMIC Ears Study

We are looking for children to take part in an important study that will assess a new treatment designed to prevent ongoing ear infections in kids having grommet surgery.

Melody Study

The Kids Research Institute Australia is looking for healthy babies (born from 35 weeks of pregnancy onwards) to take part in an important study evaluating a new medication that may help prevent Respiratory Syncytial Virus (RSV) disease.

Pertussis (Whooping Cough)

Contact us If you'd like to get in touch, please contact us by phone or email. Phone: 0400 450 240 Email: vtg@telethonkids.org.au Pertussis, also

Recruitment

Recruitment in New Zealand ran from May 2019 through to June 2021, with a total of 115 participants enrolled. Participants were recruited from two