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Research

Analysis of dyslexia candidate genes in the Raine cohort representing the general Australian population

We have conducted an association study in a novel sample derived from the Australian population to further investigate the role of dyslexia candidate genes.

Research

Obstetric malpractice litigation and cerebral palsy in term infants

The aim of this paper is to review relevant research papers to aid practitioners involved in obstetric malpractice litigation.

Research

Maternal consumption of coffee and tea during pregnancy and risk of childhood ALL: results from an Australian case-control study

To investigate whether maternal coffee and/or tea consumption during the last 6 months of pregnancy was associated with risk of childhood ALL.

Research

A comparison of autism prevalence trends in Denmark and Western Australia

Prevalence statistics for autism spectrum disorders (ASD) vary widely across geographical boundaries. Some variation can be explained by diagnostic methods...

Research

Community-Level Socioeconomic Inequalities in Infants With Poor Fetal Growth in Western Australia, 1984 to 2006

This study describes social and racial inequalities in poor fetal growth in Western Australia between 1984 and 2006.

Research

“I don't really exist here”: A reflexive thematic analysis of dissociative symptoms described by adolescents and their parents and clinicians

Dissociative symptoms are associated with a range of negative outcomes, yet little is understood about how adolescents experience dissociation in their daily lives. This study aimed to describe adolescents’ dissociative symptoms from the perspective of adolescents, their parents, and their treating clinicians.

Research

Coping Compass: co-designing a brief online positive psychology programme for youth with chronic conditions

This article presents a case study of a 12-month co-design process with young people (16–25) living with chronic health conditions to create an online, self-guided intervention based on positive psychology. Following an established framework for co-designing with vulnerable consumers, the co-design process was designed with stakeholders to promote accessibility and maximise youth engagement in the design of the programme. 

ActiveRett

Staying physically active is an important part of a healthy lifestyle. ActiveRett is a dedicated resource for helping families support their child with Rett syndrome to keep active.

How much activity is recommended?

Each family needs to select the appropriate types and levels of activity that suit their own individual needs and circumstances.

Participate in InterRett / MECP2 Duplication Research

Through InterRett we collect information on individuals with Rett syndrome on a global level. If you are a participant you can complete your questionnaire here.