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News & Events

AEDC translation toolkit helps schools help kids

A toolkit designed to help schools use AEDC data to inform planning of early childhood programs and encourage engagement with the broader early childhood community is making a difference.

News & Events

It’s powerful: The Cranbrook State School experience

By his own admission, Cranbrook State School principal Jeffrey Capell was initially resistant to the idea that the school could better support the development of children before they were old enough to actually enrol in school.

Research

Evaluation of the Positive Parenting Program

In 2016, the Australian Centre for Child Protection (ACCP) and The Kids Research Institute Australia (The Kids) were engaged to evaluate the implementation and impact of Triple P in South Australia.

Parental origin of mutations

We hypothesised that MECP2 mutations occur predominantly on the male derived X chromosome.

The range of expression of symptoms in girls and women with Rett syndrome

We wanted to describe the range and variability in the expression of symptoms in girls and women with Rett syndrome.

The diagnosis of autism in a female: could it be Rett syndrome?

We compared the symptoms and genetic characteristics of girls with Rett syndrome and both with and without initial diagnosis of autism.

The Natural History of Scoliosis in Females with Rett Syndrome

We described the occurrence of scoliosis in Rett syndrome, how it develops and how it is influenced by the individual's age, mutation type, and walking ability.

Family satisfaction with spinal fusion

Twenty-five families of girls who underwent a spinal fusion between 2006-2012 were interviewed to explore the course of their daughter's recovery.

Predictors of seizure onset in Rett syndrome

Many girls and women with Rett syndrome experience seizures. We wanted to know if there were any factors that influenced the age when seizures first developed.

Guidelines, reports and books

We have recently developed recommendations to support clinical practice for gastro-intestinal disorders including growth and scoliosis in Rett syndrome.