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Guidelines, reports and books

We have recently developed recommendations to support clinical practice for gastro-intestinal disorders including growth and scoliosis in Rett syndrome.

Consumer reference group

The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.

News & Events

HBF Run for a Reason 2014

On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.

News & Events

"You can't stop loving them" - a grandmother's story about her granddaughter who has Rett syndrome

You can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin.

News & Events

The Rett Syndrome Journey: Pathways to Follow

Our InterRett team visited Geelong, Australia to attend the first ever Rett Syndrome Association of Australia national conference.

Research

Myopia in Young Adults Is Inversely Related to an Objective Marker of Ocular Sun Exposure: The Western Australian Raine Cohort Study

In this young adult population, myopic refractive error was inversely associated with objectively measured ocular sun exposure, even after adjustment for...

Research

Pelvic organ prolapse surgery in Western Australia: A population-based analysis of trends and peri-operative complications

We investigated changes over time in the demographic characteristics of women undergoing surgery and whether the presence of selected concomitant procedures...

Research

Late language emergence in 24-month-old twins: Heritable and increased risk for late language emergence in twins

This study investigated the etiology of late language emergence (LLE) in 24-month-old twins, considering possible twinning, zygosity, gender, and...

Research

Myopia is associated with lower vitamin D status in young adults

The aim of this study was to investigate the link between vitamin D levels in the blood and short-sightedness in young adults.

Research

Maternal Dietary Intake of Folate and Vitamins B6 and B12 During Pregnancy and Risk of Childhood Brain Tumors

This Australia-wide study examines whether maternal intake of folate and vitamins B6 and B12 during pregnancy is associated with development of brain tumors...