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Using information provided by the Rett study, we looked at relationships of early development, genetic characteristics and the development of scoliosis.

News & Events

Following last year's World Rett Syndrome Congress held in New Orleans, the 3rd European Rett Syndrome Conference was held in the Netherlands over 3 days.

Rett syndrome is one of the 8,000 rare genetic diseases that collectively affect up to 10% of the population.

News & Events

Our own Dr Helen Leonard was recently featured on Today Tonight. MECP2 duplication syndrome, which more frequently affects boys, is one of the Rett syndrome...

Anyone who engages in physical activity, regardless of how much they do, can achieve mental, physical and social health benefits, resulting in benefits to their quality of life.

Coming up in 2021 Contact us We have a a study to suit every age range in 2021!  From babies at just six weeks for the FluBub Study, through to

The aim of the study is the early identification of problems with the current flu vaccines, and providing parents and professionals with up to date information.

Conference presentations

We investigated the factors that may affect the age at diagnosis for girls and woman with Rett syndrome.

News & Events

Pre-term baby