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Using information from the Australian Rett Syndrome database, we coded symptoms according to severity scales and grouped by type and location of mutation.
This study used information from international Rett syndrome database to investigate the relationship between clinical characteristics and different mutations.
Research
Pregnancy and birth outcomes of mothers with intellectual disability and their infants: Advocacy needed to improve well-beingFor mothers with intellectual disability, modifiable risk factors for adverse outcomes need addressing
Research
Raising strong, solid Koolunga: Values and beliefs about early child development among Perth's Aboriginal communityWe detail the unique findings from an Aboriginal early child development research project with a specific focus on the Nyoongar/Aboriginal community of Perth
Embrace the potential of children with Rett Syndrome by exploring how to plan opportunities for uptime, maximizing their engagement and participation in meaningful activities.
AussieRett is the Australian Rett syndrome research study. We collect information on Australian individuals with Rett syndrome from both families and clinicians
These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.
Our Searchable online database allows you to create graphs like the one below.
Our research team have done 4 studies to find out how to increase activity in children and adults with Rett syndrome.
News & Events
Term 3 school holiday workshops at ScitechEverything you need to know to book tickets to our upcoming school holiday workshops held at Scitech!