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Research
Rett syndrome in Australia: a review of the epidemiologyTo examine the prevalence, cumulative incidence, and survival in an Australian cohort with Rett syndrome (RTT).

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Young people in detention facing significant communication barriersA study revealing significant levels of language difficulty among detainees at the Banksia Hill Detention Centre underscores the need for more support for young people trying to navigate the justice system, The Kids Research Institute Australia researchers say.

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Banksia Hill project a game changer for young people in detentionA ground-breaking The Kids Research Institute Australia study, which revealed that almost every young person being held in the Banksia Hill Detention Centre had some form of neuro-disability, has sparked concern and conversation across Australia and the world.
Research
Communication, fetal alcohol spectrum disorder and youth justiceInvestigators: Natalie Kippin This research aims to examine the communication abilities of young people sentenced to detention in Western Australia,
Research
Fetal Alcohol Spectrum Disorder in the Australian Education System: Knowledge, attitudes, needs, and practicesAmy Carol Finlay-Jones Bower BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) MBBS MSc PhD FAFPHM DLSHTM FPHA Head, Early
Research
Linking a pharmaceutical claims database with a birth defects registry to investigate birth defect rates of suspected teratogensData linkage of population administrative data is being investigated as a tool for pharmacovigilance in pregnancy in Australia.
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Prevalence of neural tube defects in Australia prior to mandatoryTo establish baseline prevalence of neural tube defects (NTDs) prior to mandatory folic acid fortification in Australia.
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International trends of Down syndrome 1993-2004: Births in relation to maternal age and terminations of pregnanciesThe aim of this study was to examine trends of Down syndrome (DS) in relation to maternal age and termination of pregnancies (ToP) in 20 registries
Research
Evidence of a complex association between dose, pattern and timing of prenatal alcohol exposure and child behaviour problemsThere is a lack of evidence regarding the effect of dose, pattern and timing of prenatal alcohol exposure and behaviour problems in children aged 2 years.

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The Kids Research Institute Australia researcher a nominee for WA’s Young Australian of the YearDr Hayley Passmore is among four nominees for Western Australia’s 2022 Young Australian of the Year.