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Regression, including the loss of previously learned skills, such as hand function and communication skills, is one of the most suggestive features of Rett synd

We wanted to examine the effects of spinal fusion surgery to treat scoliosis on the functional abilities of girls and women with Rett syndrome.

We wanted to compare the frequency of fracture episodes, and factors associated with a fracture, in females with Rett syndrome, compared to general population.

The development of research partnerships is a priority for InterRett, with centres or clinicians with access to large numbers of patients with Rett syndrome.

Our study investigated the impacts of spinal fusion on survival and the risk of developing respiratory infections in females with Rett syndrome.

Our study investigated the quality of measurements obtained using the Rett Syndrome Gross Motor Scale.

Research

This study aimed to determine measurement properties of a modified 2MWT and a modified Rett syndrome-specific FMS-RS in Rett syndrome.

Research

To examine the prevalence, cumulative incidence, and survival in an Australian cohort with Rett syndrome (RTT).

We want to hear from siblings living outside of Australian cities!