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Australian children living with rare diseases: experiences of diagnosis and perceived consequences of diagnostic delaysParents of children living with rare chronic and complex diseases have called for better education and resourcing of health professionals
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The establishment of DOHaD working groups in Australia and New ZealandThis report introduces the DOHaD ANZ Working Groups and summarizes their plans and activities
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Feasibility of assessing diet with a mobile food record for adolescents and young adults with down syndromeThe aim was to assess the feasibility of assessing diet with an image-based mobile food record application in 51 adolescents and young adults with Down syndrome.
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Influence of maternal obesity on the long-term health of offspringIncreasing evidence implicates maternal obesity as a major determinant of offspring health during childhood and later adult life
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Impacts of caring for a child with the CDKL5 disorder on parental wellbeing and family quality of lifeInvestigate impacts on maternal health and family quality of life in families with a child with the CDKL5 disorder
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Glycemia, Treatment Satisfaction, Cognition, and Sleep Quality in Adults and Adolescents with Type 1 Diabetes When Using a Closed-Loop SystemAndroid-HCLS in both adults and adolescents reduced nocturnal hypoglycemia and, in adults, improved overnight time in target range and treatment satisfaction
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Early life nutrition and the opportunity to influence long-term health: an Australasian perspectiveThere is significant data to support the hypothesis that early life nutrition in the fetus, infant and young child can have profound effects on long-term health
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Biofilm forming potential and antimicrobial susceptibility of newly emerged Western Australian Bordetella pertussis clinical isolatesIsobaric tags for relative and absolute quantitation (iTRAQ)-based proteomic analysis revealed significant differences in protein expression in B. pertussis biofilms
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An exploration of the use of eye gaze and gestures in females with rett syndromeEye gaze is used more frequently than gestures for communication, and this is related to age, MECP2 mutation type, and gross motor abilities
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Lao PDR. Early childhood education project Snapshot one: project background and baseline data demographicsThis snapshot describes demographic information of the 7,520 children in the baseline sample, including where and how they live.