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Measuring use and cost of health sector and related care in a population of girls and young women with Rett syndromeThis study measured use and cost of health sector and related services in Rett syndrome and effects of socio-demographic, clinical severity and genetic...
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A new method of prenatal alcohol classification accounting for dose, pattern and timing of exposure:When examining the association between prenatal alcohol exposure and fetal effects, the timing and intensity of exposure have been ignored in epidemiological st
The Quality of Life Inventory - Disability
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FASD Hub AustraliaCarol Bower MBBS MSc PhD FAFPHM DLSHTM FPHA Honorary Emeritus Fellow 08 6319 1813 carol.bower@thekids.org.au Senior Principal Research Fellow;
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Talking, Hearing, Understanding, Knowing: A qualitative exploration of the experiences of justice-involved youth undergoing assessment for Fetal Alcohol Spectrum Disorder in a juvenile detention centreCarol Melissa Bower O'Donnell MBBS MSc PhD FAFPHM DLSHTM FPHA BPsych (Hons), MPsych, GradDip Ed, PhD Honorary Emeritus Fellow Honorary Research
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Using participatory design to create impactful health promotion messages regarding alcohol use in pregnancyInvestigators: Tess Fletcher The overarching aim of this proposed research is to explore the limitations of existing alcohol and pregnancy messages
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Online Video Instruction on Hand Expression of Colostrum in Pregnancy is an Effective Educational ToolFindings suggest that the use of an online expert video is an acceptable and effective way to educate pregnant women in antenatal colostrum expression
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Gamifying Breastfeeding for Fathers: Process Evaluation of the Milk Man Mobile AppThe Milk Man app was an acceptable source of breastfeeding information and support that fathers and fathers-to-be are prepared to use throughout the perinatal period
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Community Priority setting for Fetal Alcohol Spectrum Disorder Research in AustraliaIntroduction Fetal Alcohol Spectrum Disorder (FASD) is a neurodevelopmental disorder caused by prenatal alcohol exposure (PAE). FASD research is a rapidly growing field that crosses multiple disciplines. To ensure research is relevant and meaningful for people living with FASD, their families, and the broader public there is a need to engage community members in setting priorities for research.
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Fetal alcohol spectrum disorder: the importance of assessment, diagnosis and support in the Australian justice contextThe current article outlines how individuals with fetal alcohol spectrum disorder may experience inequities within the justice system