Investigators: Amy Finlay-Jones, Andrew Whitehouse, Carol Bower, Jacinta Freeman, James Fitzpatrick, John Wray, Kiah Evans, Narelle Mullan
The short-term aim of this project is to understand how the current Australian clinical guidance documents for NDD diagnosis work together, and to learn from clinicians and families how to better coordinate the process of diagnosis through a shared framework.
This project involves two parts and each part will be guided by a Steering Group of clinical experts and community members with lived experience:
- Part one is a review of existing Australian and international clinical guidance documents for NDD diagnosis to explore similarities and differences between guidelines.
- Part two involves online or workshop consultations with clinical experts and community members. The purpose of this consultation is to identify current gaps in knowledge about NDD diagnosis, as well as potential benefits and challenges which may come from having a shared framework to guide the process of diagnosing one or more NDDs in children.