Reports and Findings (Published Research)

Research

Down syndrome studies; the transition from secondary school to adulthood: Experiences and life outcomes for youth with an intellectual disability and their families

Helen Jenny Keely Leonard Downs Bebbington MBChB MPH BApplSci (physio) MSc PhD MClinPsych/PhD Principal Research Fellow Program Head, Development and Disability McCusker Postdoctoral Research Fellow in Type 1 Diabetes +61 419 956 946 08 6319 1763

Research

Down Syndrome Clinical Trial- BTD-001

Helen Jenny Peter Leonard Downs Richmond MBChB MPH BApplSci (physio) MSc PhD MBBS MRCP(UK) FRACP Principal Research Fellow Program Head, Development and Disability Head, Vaccine Trials Group +61 419 956 946 08 6319 1763 helen.leonard@

Research

Does gastrostomy improve the lives of children with severe disability and their families?

Approximately 13,000 children in Australia live with moderate to severe intellectual disability.

Research

Determinants and Outcomes of Preterm Birth & Pathways into Developmental Disorders

Brad Carrington Fiona Farrant Shepherd Stanley BSc (Hons), PhD PhD FAA FASSA MSc MD FFPHM FAFPHM FRACP FRANZCOG HonDSc HonDUniv HonFRACGP HonMD HonFRCPCH HonLLB (honoris causa) Co-Head, Aboriginal Health and Wellbeing Honorary Research Associate

Research

Characterising quality of life and its determinants for children with intellectual disability and their families

Andrew Helen Jenny Nada Peter Videos Whitehouse Watch and listen to Andrew Leonard Downs Murphy Jacoby PhD MBChB MPH BApplSci (physio) MSc PhD MAPP BA (Hons) MSc Angela Wright Bennett Professor of Autism Research at The Kids Research Institute

Research

A process and impact evaluation of use of a Powered Wheelchair Standing Device by boys with Duchenne muscular dystrophy

Graham Jenny Peter Hall Downs Jacoby BAppSci PhD CRFS FANZSRS FThorSoc FERS BApplSci (physio) MSc PhD BA (Hons) MSc Honorary Research Associate Program Head, Development and Disability Biostatistician 08 6319 1763 Jenny.Downs@telethonkids.org.au

Research

YoDA-F (Youth Depression Alleviation – Fish Oil)

Investigators: Ashleigh Lin, Charlotte Pugh, Matthew Poh Anti-depressant medication is not always an effective treatment for young people with depression. There is growing evidence that long-chain omega-3 polyunsaturated fatty acids (""fish oil"")

Research

Sport in First-episode Psychosis

Yael Perry BPsych (Hons) MPsych (Clin) PhD Program Head, Mental Health & Youth; Head, Youth Mental Health 08 6319 1298 yael.perry@telethonkids.org.au Program Head, Mental Health & Youth; Head, Youth Mental Health @yaelperry she/her/hers A/Prof Yael

Research

SPARX-T: An online game to prevent depression in trans young people

Yael Penelope Helen Holly Perry Strauss Morgan Moss BPsych (Hons) MPsych (Clin) PhD BA, MPH, PhD BA (Hons), Doctor of Psychology BEd Program Head, Mental Health & Youth; Head, Youth Mental Health Research Fellow in Youth Suicide Prevention Senior

Research

Resilience and Diabetes 2 (the RAD2 study)

Anna Hunt DipTch, BEd Research Administrator 08 6319 1290 Anna.Hunt@telethonkids.org.au Research Administrator she/her/hers Anna Hunt is a Research Administrator with the Youth Mental Health team. Anna’s background is in teaching. She completed a