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Co-designing a new clinical pathway to support families with children identified as having early-stage type 1 diabetes in Western Australia

Children with early-stage (pre-symptomatic) type 1 diabetes are currently identified primarily via research-based screening programmes in Australia. Once identified, families live with the knowledge that their child has an increased chance of developing symptomatic, lifelong, insulin-requiring type 1 diabetes but have no specific clinical pathway available to them in Western Australia for accessing tailored support or education. This project aimed to co-design a new clinical pathway to address this unmet need.

Citation:
Black SKP, Tully A, Davis EA, Roberts A, Binkowski S, Taplin CE, Mellor BR, Bebbington K, Haynes A. Co-designing a new clinical pathway to support families with children identified as having early-stage type 1 diabetes in Western Australia. Diabetologia. 2026. 

Keywords:
Co-design; Early-stage type 1 diabetes; Model of care; Pre-symptomatic type 1 diabetes

Abstract:
Children with early-stage (pre-symptomatic) type 1 diabetes are currently identified primarily via research-based screening programmes in Australia. Once identified, families live with the knowledge that their child has an increased chance of developing symptomatic, lifelong, insulin-requiring type 1 diabetes but have no specific clinical pathway available to them in Western Australia for accessing tailored support or education. This project aimed to co-design a new clinical pathway to address this unmet need.