Citation:
Skoss R. Navigating 'the system' to find supports and services for people with developmental disability: How can research help make this a better journey? Manifestos for the Future of Critical Disability Studies. 1: Taylor and Francis; 2018. p. 52-64.
Abstract:
Parenting a child labelled with a developmental disability is an interesting journey for many. First, parents navigate what can be a confusing world of early intervention services, residing in the health, disability and/or education sectors or a combination thereof. The impact of disability is diverse, and no doubt there is a lot of diagnosis-specific research that is being conducted. Families enter a new world of early intervention which may be provided by the health, disability or education sector depending on postcode. Transition can be problematic for children with developmental disability, particularly the transition to schooling, and it is critical that we understand how this process impacts later life. Additionally, within the health system families are navigating the transition from paediatric to adult services and within education, the transition to life beyond school opens up another set of issues to navigate. People with disability are rarely visible or included in public health campaigns.